turning stuff off, etc.
we made the decision to turn off isaiah's pacemaker this evening, and we're not really sure what result that will bring about. we have been keeping him quite comfortable for most of the day with morphine, and he probably got as comfortable as he has been in the last few days in the half hour before the hospice folks arrived to turn it off. which- of course- makes it all the more difficult.
joey has had fevers off and on for the last couple of days- the doctor says he should get better on his own in a couple more- something is going around. he hosted a film festival this afternoon in his room, and was pretty in to making us knock before we entered. the four of us have had some quality time lounging in isaiah's bed, and have been thriving on the continued quiet.
for now- we're waiting, although we feel like we won't be waiting for much longer.
thanks for keeping us on the radar this weekend.

6 Comments:
I'm here with yall. I'm glad Isaiah appears comfortable. And I hope Joey's fever breaks soon. Again, praying for strength and peace for each of you. Love to you all.
Liz
Much love and peace..
Lori
My thoughts are with you and yours this evening. Reading your posts on the blog is like going back in time for me. You are not alone in the waiting and heart break. Peace to all of you.
Like all those around you, we are praying for strength and peace for each or you. Sending you our love and hugs.
The Johnson Family
I pray that peace is with all of you. Many good thoughts and prayers.
Our thoughts and prayers are with your duing this time of making difficult decisions. Remember, you are making them because you have such love for Isaiah and the Lord is guiding you. We hope that Joey is feeling better.
The Cwiakalas - Mark Johnson's aunt and uncle
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