Jen Joe Joey & Isaiah

Friday, May 25, 2007

steroids and opiates....

last night was a rough night- isaiah was not able to get any good rest, and he has had difficulty breathing for the past several days. we have a strong sense that we are quite close to the end- but again, it is extremely hard to tell.

we called the hospice folks to talk about the best way to approach the developments this morning, and a nurse ended up coming out. we coordinated getting some steroids that can relieve swelling in his airway, and some morphine, which can trick a body into thinking it has enough oxygen. isaiah is sleeping comfortably for the first time in what seems like a long time, and it is uncertain what will happen next.

as we've said before- in life, it is always uncertain what will happen next. we just happen to have a condensed microcosm of the human condition laying in his upstairs bedroom. a gift to us in so many ways- as you all are. we'll update as often as possible- and for now, we are strengthened by the quiet.

8 Comments:

Blogger Red said...

Thinking of you,sending love and peace.

Lori, Ron, Konur and Mali

May 25, 2007 4:16 PM  
Anonymous Anonymous said...

We love you guys and pray for peace, comfort and quite.
Cathy

May 25, 2007 4:59 PM  
Anonymous Anonymous said...

You are in our hearts and we pray for what is needed at this time.

Love
Overbeeks

May 25, 2007 5:03 PM  
Anonymous Anonymous said...

Many prayers and thoughts have been pouring out of our hearts for all of you. The candle in our kitchen is a constant reminder of your heartaches and trials you all are enduring. May God's peace enfold you as you journey. Lovingly,
The Millers

May 25, 2007 6:26 PM  
Anonymous Anonymous said...

We too shall be at peace with the quiet and hope that the days ahead have more peace than turmoil. Blessings to you all and the hospice nurses as well as they guide us all down this road. I like the Miller's candle and think we too shall light one (or many) as a reminder of not only light it can bring, but that all life can be as frangle and as strong...because isn't it true that even the smallest candle can light a totally dark room? be at peace. lovingly andibwalsh

May 25, 2007 7:48 PM  
Anonymous Julie Treumann said...

There was an article in the Chicago Tribune this week about a rare disease that strikes Mennonite children. In the article it noted how one of the mothers embraces the Mennonite church's teaching that sick children are gifts from God, born to foster compassion and understanding. This really got me thinking about Isaiah and remembering well the day he was born - how tiny he was - and how Jen was worried that she wouldn't be able to hear his little cries. In all the struggles that followed, that tiny child continued to grow and strengthen and overcome. While it's far too simple to say that his continued determination to survive must have had a purpose for him, for you, for all of us who know him, it is true that he has fostered unbounded compassion and understanding. In this, the gift of Isaiah will go on in, and forward from, those who have been touched him and his amazing family. May there be peace for you all. I'm thinking of you and sending my love.

Julie

May 25, 2007 8:34 PM  
Anonymous Mary Reyholds said...

As always, you all remain in my thoughts and my prayers.

May 25, 2007 8:41 PM  
Anonymous Anonymous said...

we love you and are thinking of you. xoAme & Matt

May 25, 2007 8:45 PM  

Post a Comment

<< Home