going home
after one of the more peaceful nights in an ICU that isaiah has ever had, we're going home this morning. we're not really sure what's going to happen next, other than that we can safely tell isaiah that we're not coming back to the hospital again, and that he won't ever need lab draws or ivs or surgeries again. our meeting with the medical staff at devos yesterday didn't answer all of our questions, but it reaffirmed what we have really always known- there is no way to fix his body so that it will last much longer. we really don't have a timeframe for when his heart or his kidneys may finally fail- i suppose it's a two week to six month window- but even that is just a guess. a hospice nurse will come in this morning to assess him before he is discharged, and they will start visiting us at home to keep an eye on him-and us. we're not bringing him home to die, we're bringing him home to live the rest of his life in as much comfort as we can provide. our focus is shifting from keeping his body running to finding peace for joey, ourselves and isaiah. we're just not sure how we will approach the coming days, and i suppose it will be a lot like the days past- one at a time.
we will be in touch.
posted by joe @ 6:02 AM
7 Comments:
it could be said that shadows are half of the sunlight we see. i marvel at your ability to navigate both, to understand yourselves in both, and to understand living with your sons in both. thank you for expressing all these incredible events, so that we can read along with you, and from our distant planets, pray, cry, and laugh when the moments come to do so. much love- alic
PEACE to each one of you. Just take each one of those days that you have and hold them precious in your heart. One day at a time is truly the only way you make it through such events. God be with you.
As always - love and prayers - God Bless You All.
I struggle to find the right words to express how much I care and that I wish everyday goes smoothly. Thank you so much for the updates. I am sending lots of Love and prayers to all of you.
Nins
The right words - they can't seem to manifest from my mouth (or in this case fingers) but they are in my heart and they are words of love and care. May peace greet you each morning and rest with you at night. God bless, nancy b.
My prayers for you will be that all the days you share will be full of the sunshine that is promised by summer, the great color of fall, and the comfort of winter. much love andibwalsh
The LORD bless you and keep you;
the LORD make his face shine upon you and be gracious to you;
the LORD turn his face toward you
and give you peace.
Numbers 6:24-26.
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