thresholds of relative stress....
while we were goofing around with isaiah and giving him my hat to wear, he got a little stressed out...
he's mostly pretty low-key and content to lounge around in bed- which can sometimes be a disadvantage as we're trying to get him moving around more. he has been really into a new music therapist that just started working here since we got here- she sings railroad songs and plays guitar while he fiddles around with her cool percussion collection. he gets really focused on playing music- yesterday he played a makeshift washboard with a train and set the tempo for the therapist, and really got into the fact that she played to his speed.
we down-sized isaiah's trach tube this afternoon, which moves him one step closer to getting back to having no tube at all. it may require a couple more changes to smaller tubes before we can completely remove it- but we got a bit further along at least. his chest tube is still putting out too much fluid to remove it- so that is becoming the headline issue this week. the ICU team is going to bend the ears of the CV surgeons in the morning to see if they have any thoughts. we get a little nervous when the surgeons start getting involved, so we'll be anxious to hear that they aren't breaking out their calendars to see if they can't squeeze us in to try a surgical solution to the problem. the output level has been dropping off everyday, so hopefully we don't have to listen to any proposals for drastic measures in the near future....
we down-sized isaiah's trach tube this afternoon, which moves him one step closer to getting back to having no tube at all. it may require a couple more changes to smaller tubes before we can completely remove it- but we got a bit further along at least. his chest tube is still putting out too much fluid to remove it- so that is becoming the headline issue this week. the ICU team is going to bend the ears of the CV surgeons in the morning to see if they have any thoughts. we get a little nervous when the surgeons start getting involved, so we'll be anxious to hear that they aren't breaking out their calendars to see if they can't squeeze us in to try a surgical solution to the problem. the output level has been dropping off everyday, so hopefully we don't have to listen to any proposals for drastic measures in the near future....

6 Comments:
please keep the good news coming. hoping that the drainage is just something that had built up and not something that is still producing. love you guys very much, and can't wait to get you home. went past the mines golf course yesterday and saw some grass. not too much longer brother, and we can hit the links. jim
great to hear of the steps in the right direction in the last few days. tell isaiah he'll have to pencil me in for a music lesson, I'd like to learn how to play the washboard with the trouble-some truck :) love ya'll.
Amy & Matt
Even the good times can stress a youn lad out. I am glad there are good times though. I wish I had a good knock knock joke handy. In any case, we're thinking arid thoughts for the lungs, laughter for the rest.
much love- alic
Each day - a little closer to resolutions of the problems that have been cropping up for the past month - may that continue to happen. We look forward to having Isaiah home so that we can all treat him with tender loving care while he slowly recuperates from the nightmares he has endured - no wonder he gets "stressed" from time to time! Both of you can relate to that!! We hear that music brings relief to the soul - so glad Isaiah is having an opportunity to experience that! In the meantime we look forward to having Joey this weekend so we can practice up on our break dancing steps! Love to all. GGV
Okay, got some for you:
What do elephants like to play?
- squash
How do you get down off an elephant?
-You don't you get down off a goose.
love- alic
what a good feeling it must be for Isaiah to get to set a tempo, and have someone follow him for once. I wonder if that would work on my family. keeping our fingers crossed for more steps towards home. you are all greatly missed. all our love
cole
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