february is waning...
we finished last week with a pretty quiet sunday--scaled back on the ventilator settings a tiny bit, and didn't do much else. isaiah is not on a good, regular sleeping schedule. he grabs long naps in the morning and the afternoon, has a little extended sleep at night- then basically wakes and naps from 1 am until daybreak. sleep deprivation is always a dicey additive to the parental mix, and i think it's safe to say we're dragging a little.
both of us have been getting restless without our creative/productive cylinders firing, and we're looking for ways to mitigate that. we're missing joey again too- but he's in good hands, and is generally happier away from this scene.
i believe wednesday marks four weeks since the tethered cord release surgery, which has become a footnote at this point. we haven't met with the new medical team for the week yet, but we'll come up with a plan when they come by this morning.

4 Comments:
So we are approaching the four week mark which should definitely be some kind of limit to your stay at Children's Hospital. At least by Wednesday you and the various medical teams may be able to map out a positive plan toward which you can work to put in motion in the not too distant future. The sun IS out here today! May its rays reach all of you and shine a light on the resolution of all the problems that keep cropping up! We love you! Grandma and Grandpa Voss
Just so you know, the prayers from anonymous here in Ionia are still flowing as much as they were on day one - maybe even more so!
Just wanted to let you know that we are checking in with the blog and thinking about you every day. Wishing rest, healing and home for all of you and sending our love. Julie Treumann
Hope the warmer temps have reached you too. Tell Isaiah his new quilts are on the way! miss all of you so much love mom
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