Jen Joe Joey & Isaiah

Sunday, January 28, 2007

diagnoses of exclusion

it's kind of like a process of elimination, only less simple.... it's been a difficult afternoon here, and we're not quite sure what's going on. i suppose that theme has been developing since wednesday, but the frustration with not knowing is now running alongside some worsening of isaiah's condition. when he is awake, he is very agitated. when he's agitated, his blood pressure rises to unacceptable levels, so with reluctance, we've been sedating him more. as we wait for one of the medical services to step up and claim his issues as a result of a failure in the system in which they specialize in, we can see each of their points when they say that, based on the data, their system isn't failing. but something is wrong. so the process basically involves keeping him comfortable and waiting to see if there is an infection lurking somewhere- and things are excluded along the way. but nothing gets excluded to the point of being off the table. our fear tonight is that it's his cardiac plumbing- which may just not be good enough to tolerate everything that is happening. stay tuned, if you want. no one on this end is going to blame anyone on that end if they want to look away. we'll keep posting.

13 Comments:

Anonymous Anonymous said...

We are with you through this. Praying, praying and more praying. Thanks so much for the posts. No way I'm looking away.
Hugs, strength and peace,
Liz

January 28, 2007 9:58 PM  
Anonymous Anonymous said...

Dear Joe & Jen, I can't imagine anyone on this end wanting to look away - we are hanging in there with you and can only feel for the frustration with all the unanswered questions. Sure wish there could be a team conference with all the specialists present with you at the same time - but maybe that is only in the perfect world. For now just know that we are praying that He will soon reveal what the staff needs to know to get things turned around.
Love, Cecilia

January 28, 2007 10:03 PM  
Anonymous Anonymous said...

We are keeping constant vigil with you all. So often,the candle in the kitchen reminds us to say a prayer for this darling child,throughout the day. We are pleading for prayer power for Isaiah, for you loving parents. Our hearts, thoughts, and prayers are with you. Joe, did you ever get clean socks and.....??
Dave & Kathy Miller, Kentwood

January 28, 2007 10:44 PM  
Anonymous Anonymous said...

my soul has a sister, and an extended family in you. we will not look away, we are here to puddle with you, stand with you, pray with you, and search out an answer that does not come easily. love always, ame & matt

January 28, 2007 11:00 PM  
Anonymous Anonymous said...

I too would never look away and I will continue to check for updates in hope that you, Jen and Isaiah find some relief. I went to church today and the topic was that even though we struggle through life and sometimes doubt that GOD is with us, GOD is! May GOD bring you guys peace and strength!

Nina

January 29, 2007 12:31 AM  
Anonymous Anonymous said...

thinking of you this morning.. hoping that monday brings some answers. know that we will never look away. our eyes and hearts continue to be on all of you. call on us for anything. all our love
cole and ryan

January 29, 2007 6:47 AM  
Anonymous Anonymous said...

There are the lyrics of "AS" by stevie wonder running through me now. don't you know we're in it for the long haul bro?
-alic

January 29, 2007 7:25 AM  
Anonymous Anonymous said...

looking away is not even an option. praying ahrder, more often and with the utmost conviction seem to be the only alternative. love cannot turn a blind eye, and we have nothing but love for all of you. jim and cathy

January 29, 2007 9:54 AM  
Anonymous Anonymous said...

Looking away is the exact opposite of what is going on in cyberspace! Checking this site, dozens of times a day, for the slightest word from you is the real picture. For every post, there are hundreds who have read, prayed, and held you all in our hearts as you struggle through this. For some of us, words cannot do justice to what we feel for you. May Love, Peace and Strength surround you. Sandy R.

January 29, 2007 10:10 AM  
Anonymous Anonymous said...

We know how to "Watch and Pray" and we will continue to do that because our hearts draw us to your hearts from minute to minute. if we could only do something to "fast forrward" these hours of anxiety.We cannot thank you enough for your faithfulness at keeping us updated. The postings are the link that define our prayers. We love you!! Mom and Dad (GGV)

January 29, 2007 10:24 AM  
Anonymous Anonymous said...

I can't look a way, since my son was born the same year with Isaiah. I'ved heard his story amost everyday in the past. Jan Voss was my co-worker for a longtime. For the past few days, I was checking this site very late at night and very early in the morning. I'm praying for your family. Both of you are very strong parent. Both in heart and faith.
Sincerely,
Tuyet Tran.

January 29, 2007 1:20 PM  
Anonymous Anonymous said...

i am a stranger essentially to you all, only knowing joe from a life long ago in school. nonetheless you all must know there are people in the midst praying for your family and isaiah whom you've never met. they are reading and resting on your words and updates and have love and faith that will hopefully be present for you at the times you need them most. God is close and with you all.

January 29, 2007 2:15 PM  
Anonymous <a href="http://m1.aol.com/phentermine4">Phentermine</a> said...

Great Article! Thank You!

August 28, 2007 7:21 PM  

Post a Comment

<< Home